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Resources and Information

Please feel free to access the following Sicke Cell resources:

About Sickle Cell Organisations in the UK

• SCOOTER (Sickle Cell Open - Online Topics and Educational Resources)
• Organisation for Sickle Cell Anaemia Research
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• OSCAR Bristol 
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• Broken Silence 

About Thalassaemia 
Thalassaemia is another serious inherited blood condition affecting young people at school.  

Sickle Cell Videos for Schools

• Were you absent from school because of sickle cell and how did it effect you? 
• At school were you ever called lazy? 
• Having sickle cell and the physical pain did it cause problems in school?
• Were you ever made to do Physical Education?
• At school were you prevented from going to the toilet in school? 
• Were you ever prevented from drinking water in class?

Useful Articles:

• Dyson, SM; Atkin, K; Culley, LA; Dyson, SE and Evans, H (2011) Sociology of Health and Illness 33 (3): 465-483. 33 (3): 465-483.
• Dyson, SM and Atkin, K (2011) Sickle cell and thalassaemia: global public health issues come of age. Ethnicity and Health 16 (4-5) 299-311.
• Dennis-Antwi, JA; Culley, L; Hiles, D and Dyson, SM (2011) transition Ethnicity and Health 16 (4-5): 465-481. 

United Nations – National Sickle Cell Day
The United Nations has designated June 19th each year as Sickle Cell Day. As part of this global initiative on sickle cell, 51Âþ»­ has been working with experts on to research the experiences of young people with sickle cell in education.