Chris Knifton

Dr Chris Knifton

Job: Associate Professor - Neurocognitive and Neurodevelopmental Education

Faculty: Health and Life Sciences

School/department: School of Nursing and Midwifery

Research group(s): SSRI - Social Sciences Research Institute

Address: Edith Murphy Building, EM3.2451漫画, The Gateway, Leicester, LE1 9BH.

T: +44 (0)116 2013 855

E: cknifton@dmu.ac.uk

W: /nursingandmidwifery

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Personal profile

Dr Chris Knifiton is Associate Professor supported topic themes around dementia, childhood dementia, learning disability, neurodiversity, andragogy, and teaching and learning. He is a Registered learning disability nurse with the NMC, a sregistered social worker with soicial work England, and an Admiral nurse with Dementia UK.

Within the university, Chris hoilds roles on Equality prompts, Equality Impact Assessments and helping both staff and student become more neurodiverse aware. He also talks with staff and studenst about dementia support and support for the carer in his Admiral nurse role and is currently reseraching the experiences of HEI studenst who are carers when studying at university.

He teaches on apprentice paramedic courses, the paramedic science course, nursing (all fields of practice), Professional nurse Advocates, ACPs and social work. His teaching aligns to his topic themes as key areas of interest and reserach.

He is a regular speaker at conferences both locally, nationally and internationally on dementia, neurodiversity and autism. Chris is very open about his own autism diagnosis and its impact, talking widely abour neurodiverse-abiities and strengths of being neurodivergent.

Chris's doctoral thesis was on the sociology of dementia.

Research group affiliations

Social Science Research Institute- led by Prof Raghu Raghaven

Publications and outputs

dc.title: Role of admiral nurses in supporting people with learning disabilities and dementia dc.contributor.author: Knifton, Chris; Lyons, Victoria; Oliver, Emily; Molesworth, Sue dc.description.abstract: The average age of people with learning disabilities is increasing, meaning that the number of people with learning disabilities and dementia is also rising. The care trajectory for people with learning disabilities and dementia is complex, starting with challenges in obtaining an appropriate diagnosis through to receiving appropriate and high-quality end of life care. The charity Dementia UK recognises the issues that families experience when someone in their family has a learning disability and dementia, and has developed a model of care in which Admiral Nurses, who are specialist dementia nurses, work in learning disability services. This article explores the role of the Admiral Nurse in learning disability services and examines the areas in which these specialist nurses provide tailored support. The article also outlines the expected outcomes of the service provided by these nurses. dc.description: Published with Admiral nurses at Dementia UK
dc.title: Law and accountability for PNA practice dc.contributor.author: Knifton, Chris; Hart, T. dc.description.abstract: This article is the fifth in a series of discussion papers that outline how the professional nurse advocate role can strengthen their restorative clinical supervision practices. This article focuses more specifically on their legal responsibilities. It discusses the importance of professional nurse advocates having a clear and robust legal understanding so that their practice is safe and better informed. A special emphasis is placed on restorative clinical supervision confidentiality and record keeping. What aspects of the law a professional nurse advocate should consider is discussed and relevant guidance they should follow is highlighted.
dc.title: Equity, diversity and inclusion: principles and prompts for PNA practice dc.contributor.author: Knifton, Chris dc.description.abstract: This article, the sixth and final in a series of discussion papers, outlines how the relatively new professional nurse advocate role can be strengthened. It focuses on the equity, diversity and inclusive aspects of the role and includes the use of prompts that have been developed and can help to guide quality review and monitoring. A four-sphere model for equity is proposed to thematically discuss these prompts in greater detail, as part of regular quality review discussions and service development.
dc.title: A Socio-History and Genealogy of Dementia Thought and Conceptualisation in Western Society dc.contributor.author: Knifton, Chris dc.description.abstract: Background: Debates concerning the conceptualisation of dementia in Western society, including its framing as a specific type of disorder (such as neuro-psychiatric, part of the natural aging process, cognitive, and so on) are important in understanding how it has come to be problematized. The manner by which this has been framed has implications not only for the perceived disciplinary ownership of dementia, but also for the lived experience of people diagnosed with dementia, their families, and the care professionals and nurse educators supporting them or their carers. The work of Michel Foucault is useful in setting this debate within a critical socio-historical context. Aims: The problematization and conceptualisation of dementia in Western society, including its socio-history, is re-examined, drawing on an approach influenced by Foucault鈥檚 history of problematization. Here, through exploring alternative conceptualisations, using a Foucauldian critical history, this study reviews society鈥檚 understanding of what it is to be a person with dementia. The aim of this study then is to challenge dominant neuro-psychiatric conceptualisations of dementia in Western society and to examine and explore how alternative conceptualisations have existed through our history. This requires taking a critical review of the historical evidence of the different ways of seeing, speaking about, or understanding dementia and its subsequent problematization. Methods: An in-depth analysis of 500 documents, spanning 4,000 years, covering early Egyptian, Greek and Roman periods, through to the twenty-first century, are examined. These were sourced through academic databases and archival sources as well as snowball sampling from reference lists and bibliographies. Based on carefully considered inclusion and exclusion criteria, including personal reflexivity and consideration for researcher bias, relevant documents were compiled into an Archive representing a socio-history of dementia thought. Framework analysis was then used to examine the manner in which dementia is conceptualised and problematized in different texts or fields of discourse taken from the Archive, and emerging analytical themes were then interpreted using Foucauldian analysis. Results: Six differing conceptualisations or problematizations of dementia were found (as a natural consequence of ageing, a mental or neuro-psychiatric disorder, a bio-medical disorder, a neuro-cognitive disorder, a disability; and, a terminal illness). Conclusion: What it is to be a person with dementia is located within a particular conceptual framework, with ideas or considered truths about the condition reliant upon historically-contingent assumptions. It is here, through understanding the inter-connectedness, dominance, and the subjugation of dementia discourse, we are able to understand a range of possibilities in how we 鈥榤ake up people鈥� (classifications based on social determinants) with dementia. Through this critically reflective position, taken-for-granted assumptions about dementia are called into question.
dc.title: Dementia education in Higher Education Institutions, now and in the future: the role of the professional regulatory bodies in the UK dc.contributor.author: Knifton, Chris; Macrae, R.; Jack-Waugh, A.; Brown, M.; Surr, C.; Thompson, R.; Baillie, L. dc.description.abstract: Dementia is a global challenge and educating and upskilling the workforce is a policy imperative. A World Health Organisation priority area is the development of dementia knowledge and skills amongst health and social care professionals. The European Parliament has called for European countries to develop action plans and create common guidelines to provide education and training to professionals caring for people with dementia and their family caregivers. The inconsistencies and gaps in dementia education have been repeatedly highlighted internationally as well as in the United Kingdom (UK); this is despite the four home nations having voluntary frameworks and guidelines for dementia education. This perspectives article on dementia education is written by representatives of the Higher Education Dementia Network (HEDN), a well-established group of academics involved in dementia education and research in over 65 Higher Education Institutions across the UK. HEDN works collaboratively with Dementia UK to promote consistent, high quality dementia education and share best practice. At HEDN we believe that reference to the knowledge and skills frameworks of the four nations within Professional Regulatory Body (PRB) requirements would ensure a more rigorous and consistent approach to dementia education across the UK. Reference to the Frameworks would support their adoption as a required and monitored sector minimum standard across professional boundaries. HEDN therefore recommends that application of the knowledge and skills within these frameworks becomes a requirement for (re)validation/approval of relevant health, social and housing professional programmes. In this article we explain the rationale behind the recommendations made by HEDN and the implications for PRBs and Higher Education Institutions. dc.description: The file attached to this record is the author's final peer reviewed version.
dc.title: A history of problematizations for dementia education: A Foucauldian approach to understanding the framing of dementia dc.contributor.author: Knifton, Chris; Yates, Scott dc.description.abstract: Debates relevant to both undergraduate and postgraduate nurse education regarding the conceptualisation and disciplinary ownership of dementia, include its framing as a neuro-psychiatric condition, terminal illness or a consequence of aging are important in supporting an understanding of the lived experience of dementia for individuals and their family carers and how, as a condition, it has come to be problematized in Western society. The work of Michel Foucault is useful in setting this debate within a critical historical context. Aims: Using Foucault鈥檚鈥渉istory of problematizations鈥� we present such debates around dementia鈥檚 conceptualisation in Western society and consider how a Foucauldian critical historical project influences nursing education by re-examining the problematization of dementia within society, what it is to be a person with dementia, and how alternative conceptualisations shape how we see the condition 鈥� aswell as how we provide learning opportunities for dementia care professionals. Results: Six differing ways of conceptualising or problematizing dementia were found (as a natural consequence of aging, a mental disorder, a bio-medical disease, a neuro-cognitive disorder, a disability and a terminal illness) each offering alternative ways we might present it in an educational context. Conclusion: We argue for both undergraduate and postgraduate student nurses to engage in learning that locates what it is to be a person with dementia within particular conceptual frameworks would allow understanding of how these ideas or constructs are reliant on historically-contingent assumptions. Here, taken-for-granted assumptions are unsettled and a more critically reflective position is adopted. This will have impact on the type of nurse to emerge from educational institutions thus also affecting service delivery and the dementia care provided, aswell as the knock-on effects for dementia education in other medical, health and social care courses and for institutions whose role it is to approve professional practice curricula content. dc.description: The file attached to this record is the author's final peer reviewed version.
dc.title: Selecting absorbent continence pads for people with dementia dc.contributor.author: Brown, Jayne; Knifton, Chris dc.description.abstract: Incontinence is a common problem in people with dementia and can be due to a complex combination of physical and functional issues. This article reports on a product evaluation of pant-style continence pads, which found they could help promote dignity and independence in care home residents who had mild to moderate dementia. dc.description: The Publisher's final version can be found by following the URI link.
dc.title: Suicide risk in informal carers of people living with dementia dc.contributor.author: Chamberlaine, L.; Anderson, C.; Knifton, Chris; Madden, G. dc.description.abstract: With an ageing population comes an increasing risk of illnesses such as dementia and a growing need for care. There are 670,000 informal, unpaid carers in the UK, reducing costs for health and social care services but presenting other concerns for healthcare professionals. Carer burden and carer stress are well-documented concepts, and can lead to depression and a risk of suicide in some individuals. It is important that this risk is considered when supporting informal carers of people living with dementia. Admiral Nurses work with families living with dementia to provide the one-to-one support and expert guidance they need to manage. This article discusses a case study that highlights how caring can affect an individual, leading to thoughts of suicide. It also demonstrates how an Admiral Nurse could support the carer in a relationship-centred way, using appropriate interventions to avoid crisis. The article offers implications for practice and provides recommendations for nurses working in this field. dc.description: The Publisher's final version can be found by following the DOI link.
dc.title: An exploration of the experience of using the TENA Pants product compared to usual continence products as perceived by carers of people with dementia in care homes dc.contributor.author: Knifton, Chris; Bell, Katie; Padley, Wendy; Brown, Jayne dc.description.abstract: Abstract: Incontinence is a common symptom experienced by many older people with dementia, with an increased prevalence noted in care home settings when compared to community dwellings. Incontinence may often be a reason for care home admission. Absorbent continence pads are a common form of intervention with this client group. However, disposable continence pants are becoming more common and TENA Pants are one such example. Research Aim: To understand what are the key product satisfaction indicators for absorbent continence pads; and in light of this review the experience of using the TENA Pants product compared to currently used continence products with people with dementia in care homes. Methods: A review of the literature was undertaken to identify factors reported to affect user experience of absorbent continence pads. These results led to the development of a pre and post carer intervention questionnaire that focused on user satisfaction, which together with a semi-structured interview, reviewed a 4 week user trial of the TENA pull-up pants. Findings: Overall, high satisfaction levels with the product were recorded suggesting this to be a suitable continence product for people with dementia residing in care homes. However, the qualitative data showed that satisfaction with the pads was greatest when used with people in the early and mid-stages of disease progression. Three key factors were found to account for the highest percentage of satisfaction and as such are likely to become key predictor variables for good quality and satisfaction when developing absorbent continence pads for this client group, as well as key points for product development and marketing. These were: 鈥� Absorbent pads are comfortable to wear when they are dry 鈥� Absorbent pads need to be designed so they can be easily fitted and removed 鈥� Absorbent pads need to control odour well 鈥� Considerations for further research in this area are also discussed.
dc.title: Services for people with a learning disability and mental health disorder dc.contributor.author: Knifton, Chris; Postance, Richard; Hemel, Dot dc.description.abstract: N/A

Research interests/expertise

Dementia
Childhood dementia
Neurodiversity
Autism
Andragogy
Equity assessments
Teaching and learning

Areas of teaching

Dementia

Learning disability

Equality Act 2010

Diversity
Neurodiversity

Mental health in people with a learning disability
Autsim

Advanced communication skills
Law and ethics

Qualifications

DHSci Doctoreate in Health Science
MSc Dementia Care

MSc International Relations

MA Social Work

PGC(H)E Higher Education Teaching

LLB (Hons) Law degree

BSc (Hons) Sociology degree

Dip SW Social Work diploma

RNLD registered learning disability nurse

DCM – Adv – advanced dementia care Mapper

Diploma in counselling psychology and psychotherapy

Courses taught

Paramedci apprentice - BSc (HONS)

Paramedic Science -BSc (Hons) (traditional route)

Social Work - BA and MA

Nursing with NMC registation (all FoPs) - BSc (Hons)

Post Graduate Certificate in Empowering Education - PGCEE

Honours and awards

SBStJ, order of chivalry presented on behalf of HM Queen Elisabeth II

Attendance at the Royal Garden Party at Buckingham Palace for services to community work/edcuation of young people

Principle Fellow of the Higher Education Academy - PFHEA

institutional Teaching Fellow

Membership of external committees

In It Together Group - NTF

Dementia Community - Advisory Panel

Membership of professional associations and societies

HEDN – Higher Education Dementia Network

Student member of PASSHE (Professional Association of Specific Learning Difference Specialits in higher Education)

Professional licences and certificates

Registered Nurse - Learning Disabilities

Social Worker

Projects

Neurodiversity and Block Teaching

Paramedic students experience of Block Teaching

Increasing Childhood Dementia awareness

Neurodivergence in carers of people with dementia - making info accessible

HEI students as carers experiences of university life

Forthcoming events

Using the dialogic approach to support fellowship recognition with Advance HE - using inclusive practice for neurodivergent fellowship candidates (Cole, D. and Knifton, C.) -Advance HE Teaching and Learning Conference 2025

Neurodiversity and graduate attributes - the need for inclusive practice (Knifton, C., Golsmith, C. and Bowden, R.) - Advance He Teaching and Learning Conference 2025

Understanding EDI prompts in course design (Knifton, C) - Advance HE Equality, Diversity and Inclusion Conference 2025.

Conference attendance

Knifton, C (2024) Childhood dementia awareness - East midlands Dementia Care Research Symposium - 04/11/24

Knifton, C and Parkes, J (2024) Education and training in dementia for health and social care professionals - from national to Europena strategic principles - 34th Alzheimer Europe Conference (Geneva, Switzerlan) - 08/10/24

Knifton, C (2024) Neurodiverse role models in HEI - ANTF Symposium 2024 - 24/04/24

Knifton, C (2023) Strengths in neurodiversity in HEI and positive role modelling - ANTF Symposium - 20/04/23

Externally funded research grants information

NIHR co-applicant - DECODE project

Professional esteem indicators

Australasian journal of ageing

Diversity in Health and Social care